Thursday, 2 October 2014

Updates, updates everywhere but not a moment to type

How did it get to be October already?! ?(I know, I say that, like, every time I log on.) Definitely one of my favourite months of the year, though also the season I get most homesick for all things autumnal. Nobody rocks autumn like they do in Canada, friends.

October 1st <<2nd? I totally started this post last night> marks the beginning of Down syndrome Awareness Month, and thus the start of the 31 for 21 Blog Challenge. It aims to raise awareness of Trisomy 21 by introducing readers to the everyday lives and realities of families who experience Down syndrome. At  first I thought of participating myself and, full of good intentions and best laid plans, even got so far as adding the button to the right >> (That counts, right?)

This seemed like a good thing for me to do this month because a) we're in the middle of an international move, b) Girl Wonder is growing and changing in leaps and bounds, has many medical appointments this month and will begin her early intervention program in a few short weeks, c) I need to brush up on my German, d) am recovering from surgery on my left hand that makes tasks like typing slow and arduous, e) <as a consequence of points a through d> I am seriously short of time, and f) I'm clearly insane.

But then, well, in the *cons* column for this idea, there is also all of the above. My proverbial plate is full not only with all these grand transitions and minor causes of mayhem but with delights and simple pleasures and rare delicacies. Yes, (lover of a mixed metaphor that I am) my cup is full but my plate runneth over! Or...something like that? So anyway, 31 straight days of blogging ain't happening any time soon. On many of those points I shall endeavour to update you all in the coming days weeks oh ok, years.

A brief Girl Wonder update though (because let's face it, I'll take any opportunity, however fleeting, to wax ecstatic about this kid): she is thriving. She's still super tiny (wearing size '0') but growing up way too fast for my liking. And, though I kind of loathe the terminology and the fast-track, normative, chronological-development-preoccupied mindset that it encourages, she surprised all her caregivers by rolling over at only 10 weeks old and hasn't looked back since, hitting each 'milestone' as she goes. Her head and neck control are still weak, but she is so determined to be up and looking around and that has spurred her on. She spends so much of each day 'talking', telling us long stories full of adventure and glee and sometimes moaning over all of life's little injustices (e.g. her horse being left behind when we make an outing). She is the master of the full body smile, the entirety of her being wriggling with paroxysms of delight when she feels the moment take her; I have never seen anyone smile like she smiles and you guys, it is truly infectious. 

Five months into this whole adventure and 2.5 months out of the hospital, we are reaching some level of normality, if we are nowhere near normalising just where our lives are. For that I am so so grateful; a dozen times a day, H or I will turn to each other and say

Can you believe she is really here? 

That she’s ours and we’re hers? 

That we get to keep her?

We've lucked out in more simple ways too: Girl Wonder is, despite her rocky start in life, an exceptionally laid back and happy baby, taking everything in her stride and rarely fussy. She's accompanied us to wine festivals and concerts, gallery openings and fancy schmancy restaurants, and though I am sure some think us crazy for it, as we'd hoped, she hasn't limited our adult lives at all, only tremendously enhanced them. She rolls with it, a tiny Buddha baby for sure. She is perfection.


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In the interest of awareness, (since many of my readers may not have much experience of Down syndrome)  I'll leave that button up, though I kinda like Meriah's challenge for us to move beyond mere awareness to embracing acceptance. Let's take up the challenge!

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7 comments:

  1. I think the same sooo many times a day about Molly - She's really here? I really get to keep her forever? Such an amazing feeling, for sure.

    Let me just tell you that I looooove that you are taking your little Girl Wonder with you on every outing, and you're not letting the fact that you have an infant slow you down. I'm the exact same way! I have a full list of outings and trips to add to M's baby book, and I'm proud of that fact.

    Good luck on the big move, and hope your hand heals quickly. Also I'm pleased to hear how well she's doing. Would love to see more pics!! (When you have time, of course).

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  2. I always love a Girl Wonder update! Glad she's doing so well! Good luck with the move, and I hope your hand heals soon!

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  3. Congrats on the birth of your little Girl Wonder! Thanks for spreading the word about 31 for 21 even if you're not able to participate this year! And hey, you could always just post a picture a day :) Best of luck on your move to Germany; I have to admit to being jealous. Would love to go back to Germany -my husband and I met when we were in high school in Germany.

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  4. This post had me bursting with happiness for you dear Sadie. I am thrilled for your little family. This is a wonderful post!!! And German? How exciting!

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  5. So nice to hear from you, and that it's a HAPPY update about Girl Wonder. Sending positive thoughts for a quickly-healed hand and a smooth move.

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  6. Girl Wonder is an amazing little person! I am so glad you have each other.
    Also, I never managed to get far in daily blogging without a-f (or at least a-e), so just enjoy GW and post when you can, we'll be happy to read!

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  7. At just over a year into this parenting thing, my husband and I still ask each other "Can you believe these are our babies? Is this real?" In some ways, that awe is kind of nice. Glad to hear everything is going so well. Good luck on the move.

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