Thursday, 4 September 2014

So right

So yes, I am totally that cliché. My communications post-baby have faltered, and I no longer feel like I have the time to post regularly, never mind constructing lovely sentences to adequately convey our here and now. I marvel at those mamas who continue to post with regularity through early parenthood. There are posts I write in my head several times a week. Things I want to say, or record for posterity, or share. The thoughts come, sometimes even the words, but I struggle to find the time and space for such pursuits. Part of me still feels attached to this space and the outlet it has provided, while another part feels it is inextricably linked to a past from which I've been wrenched by these momentous past months. Months that were sometimes horrendous, but which have become filled with delights large and small with increasingly regularity.

And so I find myself back in this space to update on one such of the larger variety. Girl Wonder had her first long-term follow-up appointments last week, at a new hospital, to review both the situation with her ventriculomegaly and the possible consequences of the CMV. We knew this was coming but in the final delight at having her home, have tried to leave it to one side as we enjoyed family life for the first time.

In brief: everything looks wonderful. Her heart scan showed only minor anomalies (all of which are resolving as they should), and her brain scan found no signs of calcification, while her ventricals are measuring at the right size and growth rate for a baby of her size and age. We were thrilled. Prosecco was consumed at yet another chance to celebrate our amazing wonder of a daughter.

On leaving the hospital, having arrived with the first light of day for an early appointment and spent many long and anxious hours into the afternoon awaiting procedures, transferring clinics, and then waiting again for meetings with specialists who would interpret all the results for us, we were exhausted and elated. There was the briefest of moments when we looked at one another and felt a strange kind of disorientation.

H turned to me and said: 'Do you realize this is the first time in what feels like forever that we came to the hospital and received nothing but good news?  

It's true. Almost from the start, hospital visits kept throwing us for one loop after another. I think part of us both expected someone to say: 'I'm sorry, but we're going to have to admit her again'.

But they didn't. And she's doing awesome. The experience did indeed feel a bit (delightfully, intoxicatingly, ecstatically) strange.

I was reminded of that Paul Simon song. To paraphrase: getting used to something so right is going to take some getting used to.

And that's an endeavour - short as we are on time these days - that we will joyfully run towards.




 

14 comments:

  1. Way to go, Girl Wonder! It must feel amazing to be in this unfamiliar territory. That song runs in a loop in my head whenever things start to go our way, we're so unused to it. (And now it'll probably be stuck in my head all day!) As for blogging, I don't know how anyone does it with any regularity early on, either. I'm just now starting to get my voice back, and I feel like I have so much to catch up on. But whenever and however you're able to do it, I always love to read about how the three of you are doing!

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  2. This is so fantastic to hear- go Girl Wonder!!

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  3. You have a warrior of a daughter..........wonderful news! You might also enjoy the song by Van Morrison - Days Like This.....

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  4. What a wonderful update! I'm so, so happy for you and your sweet family :)

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  5. I'm so happy to hear things are going well :)

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  6. Such great news! So happy for all of you. Thanks so much for finding time to share this.

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  7. Wonderful news!! Very much worth toasting to! My Girl Wonder continue to inspire all involved in her life!

    And no guilt about not posting. You have a newborn. Takes time to adjust.

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  8. I also write blog posts in my head, almost daily. I'm happy you found the time for an update - "everything looks wonderful" - and such a positive one! I am so pleased for the three of you!

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  9. I'm crying & laughing at the same time. Fat tears are running down my cheeks. Seriously. How crazy is that? It may seem strange but i have such warm feelings for Girl Wonder/T. I LOVE that you had this experience and I'm so happy that you shared it with us (but more pictures, please!) prosecco you say? I knew I liked you. I hope that you, T, and H have nothing but these kind of days ahead. You deserve it...

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  10. You deserve this moment in time and so much more. I wish you and your family so much joy and happiness, equal to the comfort and inspiration you have given me. xo

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  11. So so so happy for you all! This is wonderful.

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  12. I love this post! Thank you for updating us, I think it means a great deal to us all! Sending love to Girl Wonder - mini super hero extraordinaire! But yes, more photos please!! Xxx

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  13. So happy that you are going exploring the territory of nothing-but-good-news. Girl Wonder is truly amazing and I would love to hear more of her and your story when you find the time.

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  14. Wonderful news! Girl Wonder is a truly appropriate (nick)name for your daughter.

    PS: I haven't forgotten, I just don't get anything done already now... but I will :)

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